PEPR Engagement Lead

Are you passionate about social mission organizations? Do you have a background in patient or community engagement? Do you have an interest or experience in supporting people who live with chronic pain? This might be the job for you.

About You

You are a natural connector, skillful collaborator, and movement builder. You understand people, communities, networks as well as systems and how they interact with one another. You've got a track record of community animation and are dedicated to advocacy and social change, supporting the mobilization of people with lived experience of chronic health conditions and/or disabilities. You support participation from diverse members in a network, building a sense of community and shared purpose. As a facilitator and convener, you create inclusive opportunities to align interests, build consensus and move ideas into action. You have excellent presentation, communication and organizational skills, being both process-oriented and results-driven. You understand and apply an anti-oppression, equity-seeking orientation in all aspects of your work.


Spotting opportunity and supporting others to translate ideas into action are key strengths.  You are at ease working in partnership with people from a wide range of backgrounds, lived experiences, and social contexts. You're also right at home collaborating with government stakeholders, health care providers and researchers, bridging these different contexts and cultures.


The position is full time for four years (with the possibility of extension) funded by the "Partnership for the Engagement of Patients in Pain Research" (PEPR) project”, a Social Sciences and Humanities Research Council funded Partnership grant. The project has several intersecting goals that the functions of this position will support. While funded by the PEPR project, the successful candidate will be an employee of Pain BC. Learn more about Pain BC, our national multi-stakeholder action network, Pain Canada, and the PEPR Project.

About the Role

The successful candidate for this role will be responsible for co-designing, developing, and sustaining a national "Engagement Hub" for people with lived experience of pain (PWLP) and other intersecting experiences of inequity. The Hub will be informed by community consultations with a variety of equity-seeking groups and will eventually be a virtual gathering place for community building and collective action. The Engagement Lead will work collaboratively with members of the PEPR Leadership Team, Pain BC and partners to conduct the consultations, integrate the findings into the Hub design and processes, and support Hub members to advance shared goals. The interim reporting relationship will be to Pain BC's Executive Director.


The role's specific tasks will evolve, being shaped by new opportunities for action and by the priorities of the PEPR Partnership. Overall accountabilities include:

  • Conduct consultations with members of diverse communities in order to understand their perspectives on engagement in pain research activities
  • Draft guidelines and resources for participant engagement based on the consultations
  • Build supports and create materials based on the guidelines (in collaboration with PEPR Leadership Committee and PEPR Knowledge Mobilization staff)
  • Recruit PWLP from diverse communities across Canada as hub members; co-design and provide orientation and ongoing coordination support to members
  • Mentor hub members and support co-mentoring among hub member
  • Foster connection and engagement through co-designed activities, collective ideation, and action
  • Co-develop and implement plans to facilitate the engagement of hub members in policy advocacy, system redesign and improvement, service delivery, evaluation and research
  • Build capacity among researchers, policy makers and health care professionals, including advising on engagement resources, developing or sharing tools, developing and/or delivering training

What you bring:

  • Education, training, and experience that may include community development or animation, outreach in a social purpose context, "patient engagement" in research or equivalent.
  • Confidence with convening, facilitating, and public speaking
  • Experience in anti-oppression, decolonization, anti-racism and other rights-based frameworks for action
  • 7+ years’ recent related experience.
  • Lived experience with chronic health conditions and equity-seeking communities is considered an asset to this role
  • Proficiency with a virtual working environment (slack, zoom) and the MS Office suite

Core Competencies:

  • Critical thinker with a strong bias for action and an entrepreneurial bent
  • Demonstrated skills in engaging people with lived experience as essential partners in research, health/social service system design and delivery and policy advocacy
  • A clear understanding of the connection between engagement, cultural safety, improved decision making, and health outcomes
  • Self-awareness and emotional maturity - ability to maintain composure under pressure, balance multiple competing priorities and navigate difficult conversations
  • Service orientation - focuses on the experiences of people with lived experience, partners and other stakeholders in their interactions with Pain Canada
  • Takes a collaborative approach to solving problems and making decisions
  • Excellent communicator in both written and oral forms (with bilingualism in English and French an asset); effectively informs and influences others

Salary, Hours and Location of Work

The initial salary for this position ranges from $60,000 to $75,000 with a competitive benefits package including four weeks of paid vacation, health and dental coverage with a flexible health spending account, a remote-work stipend, and an employer-provided RRSP match.


This is a full-time, work-from-home position (37.5 hours a week) with flexible hours given that the role will be interacting with partners and PWLP across multiple time zones. Infrequent interprovincial travel may be required.


While this role will work on the Pain Canada initiative, the successful candidate will be employed by Pain BC. Pain BC is committed to the principles and practices of an inclusive and equitable employer. We encourage applicants from communities which are structurally marginalized based on race, religion, nationality, sex, age, disability, sexual orientation, gender identity and/or expression.


If this sounds like you, please apply using the Indeed portal or No phone calls please.